Alhamdulillah..

We are back from Tulsa with wonderful news. Irfan had his echo and EKG done and they turned out good alhamdulillah. We are grateful beyond words.

The chest x-ray that was done earlier in Wichita was not accurate and seems like his pediatrician didn't do a good job in interpreting it. He's not a cardiologist after all.
So, alhamdulillah the echo that we did in Tulsa showed better images of Irfan's heart and the size as well. Nothing concerning so far.. and I pray it will stay that way forever amin.

Your life could change in a split second, take a look around and you will see the faces that you love. Never take them for granted.. and never let them down.

Prayers for my baby

Things are not going too well with Irfan. As you may know, he had kawasaki (K) when he was 6 months old and it affected his heart. He had a small dilation/ aneurysm at his LCA that regressed after awhile. It took him 4-5 months before he stopped taking aspirin. Life was definitely devastating.

Soon after his echo result was positive and he was off aspirin, we moved from Oregon to Kansas. He has been an active healthy kid since then. He got sick on and off because of the daycare, but NOTHING close to the K that he had. I really don't like to say the word K**. I feel like it's a cursed.  

Irfan has been able to live the life like any other kids. It was a bless for us seeing his smile again and alhamdulillah his echo result for the past two years made us feel like we were given a second chance.
All was good until last week. Irfan and I went to see his pediatrician for his annual 3 year old check up. We requested an x-ray for his upcoming echo that will be done in Tulsa this coming Monday 10-17-2011. We were about to leave when his doctor came back to the our room and told us that his heart has enlarged.
I was shocked.
I managed to pull myself together and asked several questions.
I cried while waiting for Irfan He was playing at the play area in the waiting room
I just couldn't describe my feeling.
I am scared, I am devastated, I am furious, I am pasrah..
I keep asking myself, why Irfan... why does it always have to be Irfan
I have no answer.

Please pray for my little Irfan. Tolong doakan his heart is functioning at it's best and it is normal with no signs of abnormalities. Tolong doa for Irfan's health aminnn..

Please make doa for his full recovery..

This is a story about my baby, Irfan. About six weeks ago, Irfan was terribly sick. It felt like a nightmare to both Zuhri and myself... I cannot even believe that this was happening to us. I was devastated for weeks and was about to lose my mind. Yet, I have faith in Irfan. I know he's a strong boy and Insyaallah he will win this battle.
Here's how it all started..

03/23/09 Mon
Irfan's 6th month check up. Found out that he had a very bad ear infection. Prescribed amoxycilyn.

03/26/09 Thurs
Noticed Irfan was fussier than usual. Planned to take him to COPA (children's clinic) the next day.

03/27/09 Fri
Irfan was at babysitter's. Temp was 101F. We didn't know it was that high until we came by to pick him up. Went to COPA, saw the nurse (we didn't even know she was just a nurse, kalau tau mmg sah takkan set appointment dgn nurse bangang). She said it was just common cold.

03/28/09 Sat
Woke up in the morning. I was trying to comfort Irfan when I noticed his neck betul2 bawah telinga swollen. It was big like a size of a golf ball. I was scared panggil zuhri suruh check. Again went to COPA. Finally saw a real doc, did blood test. So doc ckp the swollen neck is lymph node infection. The lymph node bengkak sbb antibodi is fighting the bacteria from the ear infection. She prescribed a stronger antibiotic, augmentin. And she told us to give Irfan Motrin too. Malam tu kesian sgt Irfan, muntah2 sbb tak tahan dgn ubat tu.. sedih sgt. Temp was 103F. Mata start merah. I realized jari Irfan dah bengkak2.

03/29/09 Sun
Went to COPA again. Irfan hasnt been eating.Saw the stupid nurse that we saw on Friday (again didn't know that she's not a doc). We told her about Irfan muntah2, mata merah and temp still high 103F eventhou dah makan the strongest antibiotic. Nurse still blur2 and ckp we were on the right track sbb lymh node dah tak bengkak sgt. We asked about the red eyes, dia ckp ooo since Irfan panas n demam tu sbb mata merah. grr..

03/30/09 Mon
Irfan's temp was still 103F, mata sgt merah, kaki n tangan bengkak, mulut pun sgt merah and badan lembik sgt. Irfan tido all day and didnt even want to eat. We were terrified. Went to COPA again and saw another doc. The doc looks really weird, pakai selekeh n tak mcm doc langsung. He checked Irfan thoroughly and suspected that Irfan kena kawasaki disease. He took some blood for the lab and did TB test. The doc told us to go home and google for kawasaki disease.
About 3 pm, the doc called. Dia tanye kalau kitaorg dah baca pasal kawasaki and what our thought on it. From what we read, 80% of the symptoms ade pada Irfan. Both Zuhri and I cried. We packed our stuff and drove to the hospital.
Late evening around 5 PM, they put Irfan on IVIG and gave him aspirin. Irfan looked much better and started to smile again. Sgt bersyukur.

03/31 Tues -04/03/09 Friday

Tuesday morning was a blessed. Irfan showed major improvements, no fever, his lips and eyes were back to normal, lymph node regressed, most importantly dia dah energetic balik.
We did our first echo (scanning Irfan's heart). The result was inline with kawasaki disease. His coronary arteries showing dilations and it is a common finding in kawasaki patients. I was terrified and really worried about Irfan. We noticed that Irfan developed some rash and we're pretty sure that was caused by the IVIG. Irfan wasn't sleeping very well at night. I have to hold him all night long.

On Wednesday, Irfan was showing a much better appearance. He's back to his normal self but still having diarhea. Irfan's tempeature was stable alhamdulillah. Kalau temp Irfan went up high again, he will need another dose of IVIG. Another sleeples night, I was holding Irfan until 5 AM because he couldn't sleep by himself. I finally asked for a bed so that I can lie down with him.

Thursday, temp was good. Irfan was doing and eating well. All of us were still in the hospital. We were still off work and the 4th day tido kat hospital. The room was super nice. I had a bed that I shared with Irfan, zuhri was sleeping on a sofa. The view from the room was superb.

Friday, we were told that we can leave if blood result is good. We did blood work to check on his condition. The result was showing improvement and we were allowed to pack home. Alhamdulillah..
The 3 main things that they were interested were CRP 3+ (normal: 0.075) , platelet 400k+ (normal: 300-400k) , ESR 70+ (normal: <20)

We went home feeling grateful yg Irfan recovering and that we caught the disease at an early stage. I guess it wasn't early enough to avoid heart complications but it could have been worse if it wasn't treated in a timely manner. I felt guilty for sending him to the babysitter (I'm very sure that's the main cause) also guilty for not breastfeeding him... I've tried so hard.
To all family and friends, tolong doakan Irfan for his full recovery, semoga coronary artery dan jantung Irfan kembali normal, semoga Allah sembuhkan abnormalities & dilation and semoga dia akan off Aspirin InsyaAllah.

Monday evening when we got admitted